Vegas
is the place we love to go, that is my boyfriend, Brian Burns, and I. Craps is
the game we spent hours playing. On November 10, 2013 I woke up in a Mirage
penthouse suite scratching my right breast, and noticed a new, rather large
lump. I asked him to feel the lump in my breast to make sure I wasn’t crazy.
Brian confirmed it was indeed a lump and prompted me to make an appointment with
the doctor as soon as we got home. When I was 18 years old I had a cyst in the
same breast the lump was now in. At this point in time I was a bit concerned,
but I was nearly certain it was once again going to be a cyst. After all,
breast cancer never ran in my family.
On
November 12, 2013 I went to see my primary care physician. During this visit
she confirmed that there was indeed a lump in my breast, but she also noted how
it appeared squishy. This made me feel even a bit more relieved, and I continued
to believe it was going to turn out to be a cyst. The primary care physician
made arrangements for me to receive an ultrasound on my right breast.
On
November 20, 2013 I was scheduled to have an ultrasound done on my right breast
at the Joe Arrington Breast Cancer Center in Lubbock, TX. I recall walking into
the waiting area of the ultrasound facility and looking around the room. All of
the woman appeared to be the age of my grandmother. I noticed a large board at
the entrance area that woman had signed as they were fighting the horrible
disease of breast cancer. I felt sorry for all of these people battling such a
disease. I knew I was young and breast cancer didn’t run in my family so there
was no way I could have it. When the technician began examining me she was
stunned to see the size of the mass. She asked me questions if I thought it
could be an injury? I couldn’t recall anything. The technician also questioned
how long it had been their? I am not a very modest person, and I am living with
my boyfriend. When at home, I primarily run around in my underwear and nothing
else. Since I am accustom to such an attire, I, along with everyone else was
shocked that I did not find this mass sooner. The ultrasound though did not go
as I had planned it would. The technician performed the ultrasound on my right
breast within 5-10 minutes, and then she informed me she would be back. The
technician was gone for approximately 30 minutes, and it was during this time
period that I began to feel anxious. The technician finally returned to my exam
room with a radiologist doctor. The doctor informed me that the mass in my breast
was definitely not a cyst, but was a large mass that they needed to perform a
biopsy on. I was stunned. I recall leaving the appointment in disbelief and
shacking profusely.
My
biopsy was performed on November 27, 2013, the day before Thanksgiving. I was
very nervous when going to this appointment, but kept trying to be positive.
When I was called back for the biopsy the technician informed me she thought
when I stood up I was going to get my mom or grandmother to assist them as the
patient, because again I was so young to be receiving a breast biopsy. The
biopsy took nearly an hour and a half. They performed a core biopsy that
involved taking a total of seven biopsies from the troubled mass area. The
biopsy was uncomfortable, but I was glad it was over. Now, I just had to wait
for the results.
During
the Thanksgiving Holiday my right breast was sore and swollen, but I continued
to hope for the best. On the following Monday, December 2, 2013, the nurse from
Joe Arrington called to check and see how I was doing. I informed her of the
pain, swelling, and some bleeding. I also asked her when I would hear my test
results from the biopsy? She informed me that the radiologist that had taken
the biopsies was on a rotating shift, and would not be back in the office for
six weeks. The nurse confirmed with me that my primary care physician would be
calling me with my test results soon. On Tuesday I still had not heard back on
my results, so I called my primary care physician and left a message for her
nurse, and I called the nurse at Joe Arrington once again.
On
Wednesday I was becoming even more anxious as the longer I waited for the
results. The nurse at Joe Arrington confirmed with me that the results had been
sent to my primary care physician, but she would instruct the lab to send them
the results once again. I called my primary care physician, and got the nurse’s
voicemail once again. I left a message, and finally a few hours later received
a call back from the primary care physician’s nurse. She informed me, in a
laughing matter, that they had not received my results and it could be due to
the fact that they were having problems with their fax machine. I called and
left a message for my primary care physician’s nurse two more times that
afternoon, and still had no results by the end of the day.
December
5, 2013 is the day Brian and I had been anxiously waited to jet sail with all
of our friends to the National Final Rodeo in Viva Las Vegas. We actually met five
years previously during this trip, and this made his 25 trip. This trip is
filled with friends that have been made throughout the years, and it is
something we look forward to all year long. The temperature in Lubbock was a
bitter 20 degrees, with sleet and snow. Our flight ended up being two hours
delayed due to mechanical problems. At this time Brian was also becoming
anxious to know what my test results said. He instructed me to call the
doctor’s office every hour until we were Vegas bound. So I did. I began with
calling the nurse at Joe Arrington. She informed me at this time that she had
called my primary care physician’s nurse voicemail several times on Wednesday,
but had not received a response back. She also informed me that she had
instructed the lab to resend the pathology reports on Wednesday. I did as Brian
said and I left numerous voicemails on my primary care physician nurse’s
voicemail as we waited to leave for Vegas.
Our
Southwest plane finally arrived to get us in Lubbock and take us to Vegas.
Brian and I were both in the B group, so we waited patiently. My phone began to
ring, and I recognized the number as my primary care physician. Part of me did
not want to answer it at that very moment, because I wanted to enjoy my trip.
The other part of me wanted to know what the test results and future held for
me. I answered the call, my primary care physician immediately began to
apologize and stated she had no idea what had happened to my test results. She
also informed me that she would not have kept these results from me, and I
immediately knew that the news she was going to reveal to me was not good. As I
am walking through the terminal my primary care physician is informing me it is
indeed cancer, it had not spread to my blood, but that was all she was really
able to tell me at that time. She was also going to schedule an appointment for
me with an oncologist surgeon as soon as possible. At this point I am sitting
on the plane wanting to do nothing but curl up and cry, and I am shacking
profusely. I texted my mom (Susan Fritz) and sister (Katie Fritz) letting them
know the results before the stewardess informed me that all phones must be turned
off, and we were off to Vegas. I later learned during my first oncology visit
that the test results from the biopsy were actually posted on November 30,
2013, which was nearly a week before I received the results.
Brian
and I went to Vegas as planned. I did have some breakdowns, but I am not sure
who wouldn’t after receiving such news and not knowing what the future holds. I
was scared! Brian and I returned from Vegas late in the evening on Monday,
December 9, 2013, and on Tuesday, December 10, 2013 we both made numerous phone
calls to determine the best battle plan of action for me. I had an appointment
scheduled with an oncologist surgeon, but we needed more. Our neighbor is a well-known
anesthesiologist in the Lubbock area. Brian notified him of my situation, and
phone calls began to come through with appointments. Additionally, I submitted
my application to MD Anderson.
Wednesday,
December 11, 2013 was a long day for both me and Brian. He went with me to my
long day excursion, and I was beyond relieved to have him by my side. Our day
began at 9:15 a.m. where we meet with the oncologist surgeon. This doctor
informed me that I had stage III breast cancer that was spreading at a 90%. We
then meet with an oncologist that had just transferred from MD Anderson. I was
very impressed with the thoroughness of this doctor, and he informed me that I
would be starting chemo soon because the cancer was spreading at such a fast
past. The doctor informed me that they needed to do chemo before surgery in
order to shrink the size of the 3 centimeter tumor. He was also concerned that
there were other tumors that we currently dormant in my body, and chemo was the
only thing that could stop these from progressing. The doctor was also
questioned if he felt another lump in my left breast. The oncologist asked me
if knew what a port was, and I had no clue. Brian confirmed that I definitely
wanted a port, and this would be the place that chemo would enter my body and
where blood test would be drawn from. A nurse navigator came to see me at the
end of the doctor visit to provide a lot of information pamphlets and support
group paraphernalia. By this point in the day it is 1:15 p.m. and I am hungry
and shaky. Brian and I head to the cafeteria in the basement and each have a
ham sandwich. During this time the genetics nurse called to see where we have
gone, and I am impressed they even notice that we escaped for a bit. After
lunch we head to the lab where they draw eight test tubes of blood and have me
do a urine test. From there we go to register for my surgery on Friday to
receive the port in my arm, along with an EKG and a chest X-ray. Brian and I
then headed back to the oncologist surgeon to receive the schedule of
additional labs, and then I spend an hour with the genetics nurse discussing my
family tree. Wheeew!!! The day is finally complete at 5:15 p.m. We are both
overwhelmed with information, and I feel as though my head is spinning! Now I
am getting a port in my arm in 2 days and on Monday I will begin to receive
chemo. What a world wind!!
On
Thursday, a ct scan was conducted, and I spent the afternoon running errands
because I was unsure when the next time would be that I felt good enough to do
this again? My mother drove five hours on this day from our family ranch to be
with me during this time. My mother asked if I had told any of my friends of my
condition, and I informed her I had not. That night as I went to bed, I decided
to call my best friend, Greg Clark aka Bub, and informed him of the news. Bub
was shocked and very upset to hear the news. This is the exact reason why I had
elected to steer away from really informing anyone of my situation.
On
Friday, December 13, 2013 (what a date for all of superstitious ones out there),
I received the port in my arm. We left the house at 5:15 a.m. I was extremely
nervous about the procedure. For one, this was only the second time I would
ever go under anesthetic. The other time I went under was when I was three
years old and had my tonsils removed. I was also anxious and nervous about what
my port would look like, and what others would think? My port procedure turned
out to be a great success, and I was headed home by 10:30 a.m. Bub had called
my mom’s phone an informed me that he was making the six and a half hour drive from
his home to see me. During his drive Bub called mutual friends and judging team
members to let them know of my diagnosis. Brian had also taken it upon himself
to call all of my close girlfriend’s and inform them of my diagnosis during the
procedure. The news spread like wildfire, and I began to receive phones calls
from friends from all over.
During
the weekend my arm was sore, as expected. My mom and I did Christmas shopping
to help keep my mind at ease, after all I was starting the dreaded chemo in
just a few short days.
On
Monday, December 16, 2013 I went in for my first round of chemo. Brian and my
mom went with me to chemo. We were under the impression that I would only receive
chemo every 15 days. The nurse navigator took us back and taught us all of the
ends and outs when being treated with chemo. It was during this meeting that I learned
I would receive the first protocol treatment of chemo every Monday for 12
weeks, and then it would be followed up with another protocol of chemo that I
would receive every three weeks. The nurse navigator went over all the essential
information from the 50% chance that I might lose my hair, to the 72 hours my
saliva could contain chemo, to the type of diet I should be on, to possible
constipation problems. I recall sitting down for my first treatment of chemo and
looking around the room, nearly all of the other individuals that were getting
treated seemed to be my grandmother’s age, just as they had been when I had
first gone to get my ultrasound. I felt as though they were all looking at me
and saying, look at that poor young girl through their bifocal glasses.
MD
Anderson had called me on the previous Wednesday and Thursday. However, due to
the stacked up doctor appointments and lab testing I had been unable to talk to
their representative. I called and left a message for the representative on the
previous Friday afternoon, and she elected to call me while I was receiving my
initial saline solution prior to chemo. The representative informed me that
since I was about to receive treatment, then they could not see me until this
12 week protocol was complete. My mother freaked out, and called them back to
further discuss this matter, but continued to receive the same information. She
wasn’t sure if she should pull me from the chemo chair at that very moment
since I hadn’t received any chemo yet, or if we should stick with the plan the
Lubbock oncologist had provided us with??? So many major and stressful
decisions!!! The MD Anderson representative confirmed that the earliest they
would be able to get me in would be mid-January. With my cancer being at a 90%
progression rate, Brian and my mom agreed that I should begin to receive the
treatment protocol as planned that day.
After
the initial saline injection, two pre-chemo treatments, and two different bags
of chemo, I was finally done with my first round five hours later. The doctor
had prescribed for me to have an anxiety pill and there was also Benadryl in my
pre-treatment, so I was asleep a good portion during the treatment. Brian and
my mom continued to work on contacting MD Anderson during this time. Brian was
able to come in contact with an oncologist. Throughout the next three days my
mom exchanged numerous emails with this doctor, but it was once again confirmed
that I could not go to MD Anderson until my first round of chemo treatment is
near completion at 12 weeks.
The
nurse navigator had informed me that I would be receiving my chemo treatment
every Monday, and every Tuesday I would receive the Neubogen shot, which is to
increase my white blood cells. So, on Tuesday, December 17, 2013, I went to get
my first shot. I also had an echo heart exam and a body scan conducted on this
day. In order to conduct the body scan, my body had to take in a radiation
fluid. My port was stuck for the second time, and let me remind you it had only
been placed on Friday. So, at the end of the day, my port was extremely sore.
Wednesday,
December 18, 2013 was filled with more tests, mammograms, ultrasound, and a
breast MRI. I had a melt down by the time I got to the breast MRI at 4:00 p.m.
They informed me they would have to stick my port once again, and I freaked
out, informing them how very sore my port already was. They needed to stick me
once again for the dye to enter into my body. I elected to have an IV ran into
my body, and the breast MRI was complete. I left these tests hoping I would not
have to endure any more test for a while.
On
December 30, 2013 Brian, my mom, and I headed to see an oncologist to finally
receive all of my test results. My oncologist was out of the office still for
the holiday season, but we were hoping the new oncologist could give us some
insight on what the ct scan, bone scan, breast MRI, etc could tell us. Boy,
were we wrong! When we meet with the oncologist on that Monday morning we found
the doctor to be very unprepared. He had not reviewed any of the test results
prior to meeting with us. The doctor appeared uncomfortable with answering our
questions, providing information, and we all got a sense that he was holding
back information from us. He did express some concern that there was suspicion
appearing on the 10th rib that could be either cancer or a prior
injury. More testing would be needed to determine this, and he noted that they
could have to take a piece of the rib in order to determine if it was in fact
cancer. I recall asking the doctor if it was in my bone what could we do, and
he replied “there is really nothing that can be done”. This made me cry, and
realize how serious my situation was. We also learned during the doctor visit
that there is 5mm suspicious area in my left breast, as well as a suspicious
lymph node. The doctor did provide us with copies of the test results to keep
for my records. Brian stayed with me through chemo that afternoon, which went
well once again, and my mother headed back to the ranch. We scheduled an
appointment to meet with my actual oncologist on the following Monday.
Ok,
2014 please be good to me!!!!
On
January 1, 2014 I sat down to organize more bills, appointment calendar, test
results, etc. I came across the results the oncologist had provided me with on
12/30/2013. I opted to read over all of them so I would know first-hand what
was going on. On the breast MRI there were notes in regards to suspicious chest
wall invasion. I began to feel scared and angry. Scared because this could mean
the cancer was spreading at a very high speed across my body. Angry because the
doctor we had met with had not mentioned anything about this. I also learned from the breast MRI that my
tumor appeared to be growing based from the initial biopsies. Additionally,
during my first initial ultrasound, which was approximately a month prior to
the breast MRI, there was no mention of suspicion in my lymph nodes. The breast
MRI now has a suspicious lymph node, which paints an obvious picture at how
aggressive the form of cancer that I have is. I was anxious to see what my
oncologist has to say about all of my test results during our doctor visit
scheduled for January 6, 2014.
January
6, 2014, it is my 31st birthday. Oh yea for me, not! This birthday
brought the meaning of “shots, shots, shots” and “slap the bag” (usually
meaning slapping a bag of Franzia Wine as you chug it) to a whole new meaning.
This birthday was filled with getting real medical shots, and bags of chemo.
BOOO! My first appointment being lab was scheduled for 10:15 a.m. My
oncologist’s nurse called me at 9:30 a.m. to inform me that my doctor was
stranded in the north east area due to bad weather, and we would have to
reschedule my doctor’s appointment with him for the following Monday. The
weather in the north east had been very treacherous, with temperatures being
below 60 degrees, and extreme amounts of snowfall. I felt bad for my mom
because she had made the 5 hour trip specifically for the doctor’s appointment,
but it wasn’t my fault. Brian went with me to chemo, and that was pretty much
the extent of my birthday. I felt pretty depressed on this birthday, were
usually my birthdays are filled with fun and excitement. This one felt just the
opposite, as I grew one year older.
On
January 7th, Brian woke-up early to head to Midland for work. I had
my weekly Neubogen shot scheduled for that morning and I had planned on going
into work some that day. I took my normal morning routine shower, and was
saddened when an excessive amount of my hair was coming out in the shower and
when I brushed it. It was not coming out in clumps as people had informed me it
would, but it was definitely coming out more excessively than normal. I knew
the time to finalize my search for a wig was coming nearer.
On
January 9th my new hairdresser, Ms. Yolanda Clay, picked me up and
we were on a mission to find me wigs. I was beyond thankful to have a
hairdresser go with me to pick out my wigs, and we found a perfect fit! Pictures
will be available soon. If you are looking for a new hairdresser in the Lubbock
area, you should contact Yolanda at Encore Salon, she is wonderful!!
After
five and a half weeks, we were finally able to meet with my oncologist to
discuss my test results on January 20th. My oncologist showed no concern of the
suspicion in the 10th rib. He also confirmed that if there is anything
occurring within my left breast, lymph nodes, or chest wall, then the current
chemo will treat these areas, and any others that might be affected. We were
beyond relieved to learn this information! After meeting with the doctor on
December 30th we thought my cancer stage might be increased to IV, but based
from this news it could stay at a III. Additionally, the doctor was amazed at
how much my tumor was shrinking. My tumor originally felt like the size of a
Vienna Sausage, but now feels like a marble. This is a major transformation!!!
On this day I also received my 5th chemo treatment, only 7 more to go, and then
on to the next set of chemo.
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